It might be time to put some in my phone so I remember to actually update this thing. I’ve been doing fairly good since last time, no major health stuff really. Up until a couple of weeks ago when I had my first relapse since being on DMD’s. Luckily it was a very very mild one and passed within a week. I got this weird pinching sensation across the nose which evolved into slight numbness that spread all over my face and a few inches up into my scalp. I managed to get a Dr’s appt. fairly quickly and he agreed that it was a minor relapse but that I need an MRI and most likely switch to a different DMD.
I knew that this would happen sooner or later but I was really hoping that it wouldn’t come this fast. Now I’m looking at the various other DMD-options and being unnerved by the side effects. I’m hoping that the MRI appointment will be sooner rather than later, but still no info on that.
The other weird thing I’ve been dealing with has been 2 weeks of really small or nonexistent amounts of sleep. I’ll be up all day and all night and MAYBE manage to fall asleep early in the morning, sleep for 3 hours, wake up and feel like a million bucks. Rinse and repeat. It finally culminated yesterday morning with me being up for 50 hours before finally falling asleep for….yes, you guessed it: 3 hours. I kinda want to be worried about this because it’s just so odd, but at the same time I’ve been feeling absolutely fantastic so I somehow feel like why would I even complain!
People have been super adorable and worried about it but I try to make them see that I really don’t suffer any harm from this lack of sleep – quite the contrary, I feel extremely energetic and really really great. Damn those people and their concerns!
In other news….N is now finally an uncle to an adorable little baby girl! I’m trying to convince him to go visit sooner rather than later but he’s a little bit stubborn about it. I think it’s mostly due to his employment ending yesterday and him feeling a little bit stressed out about what happens next.
Apart from that, life is good. I have a few extra lovely people who make my days absolutely delicious and I couldn’t be happier.