It is very quiet. No I haven’t disappeared from the face of the earth. I’ve just been busy burning myself to a crisp in the sun and reading the GoT books. Currently I’m in a waiting room waiting for my turn to do yet another MRI. This hospital is going …
Ran across something when reading the MS subreddit and I really want to share this. No, I don’t have lupus but this hits home in so many ways and is a very useful way of explaining what life is like with these types of illnesses.
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
So, I’ve been AWOL for a couple of days. No particular reason for it, just kinda got stuck in life. Another MRI in June has been scheduled, part of the study I’m in. I also managed to get my subscription renewed and order new meds, so they should be here …
Ever since I was diagnosed in January, probably even before then, when I was admitted to the hospital I’ve been trying to focus on not overthinking everything. No freaking out over the smallest things, no thinking that every little thing/pain/discomfort etc is a symptom of my disease. I have to …
Had an MRI appointment this morning, went well. Same old. Tomorrow I see the neuroophtalmologist. Fun times. N got a call today offering him a temp job starting tomorrow until September 15th. If the person ahead of him, who is being offered the permanent position declines the job is his. …
Maybe not fun but chill. Nothing much is happening but that’s totally fine with me. Tomorrow’s plan is an MRI in the morning, after which I may or may not go to the office. I really should. But ugh. We’ll see how I feel afterwards. The rest of the day …
The movie has nothing to do with this post, it just sounded and felt very accurate. Literally broken. My computer is broken and after extensive testing where we went through all components, it’s still broken. It’s so damn frustrating to not be able to pinpoint what’s causing the issue. Oh …
I’m starting to think that I’m slowly disintegrating. My face has now gone into some sort of self destruction act where the skin closest to the nose on both cheeks has become so dry and red that I’m….crunchy. I don’t understand where this is coming from, I’m not doing anything …
I’d completely forgotten to tell you about a delicious müsli that I’ve concocted; some coconut shavings, chopped nuts (I chose to use hazelnuts, walnuts and unsalted cashews, but you can vary this however you’d like), sunflower seeds, flax seed and dried, unsweetened goji berries. I’d like to put in other …
Jesus, the wind outside today is crazy! The fall is definitely here, it’s dark, rainy and gloomy – fantastical! I really like the fall, it’s so pretty. Something a lot less pretty is this damn headache I woke up to today, painkillers aren’t making even the tiniest dent in it. …