Still not ready to go into details about the trip. My mood is like a yoyo. I haven’t had one whole entire day be good since I came back. Why am I not ready? Partially because of sadness. Most of the time I’m grieving a loss, it seems. And even …
It’s been over a year. To be fair, I kept it going for a while online until I recently decided that I missed the writing itself. A lot of things have changed and yet, a lot is still the same. We moved, April of 2015. All of a sudden, we …
Is this going to turn out to be the longest year in memory? This past Thursday was tests day again. Every 6 months, I repeat the same tests and eye exam for the study I’m part of. Pretty quick and painless. The upcoming Monday however? That’s probably gonna be not …
Life is fucking surreal. In general, on and off, life itself shifts from mundane and pedestrian to some kind of normal middle ground to the weirdest, most random and surreal shit you’ve ever seen. Currently, my life is so fucking surreal. I was going to say chaotic at first, but …
I need a vacation. Preferably somewhere far away from everything, a cabin in the woods or something. I can’t deal with life anymore.
The weather is lovely although I could do without the full days of rain. Life is pretty good right now. I’ve finally reached a state of….normal? That’s the best word I can think of right now to describe it. The fatigue is absent, my memory has been improving and in …
The time of no sleep is over. It was a fun 2-3 weeks. I leveled out to a normal for a couple of days and then it went downhill. Had a couple of days of fatigue and am now at a point where it’s gotten a bit better, but I …
It might be time to put some in my phone so I remember to actually update this thing. I’ve been doing fairly good since last time, no major health stuff really. Up until a couple of weeks ago when I had my first relapse since being on DMD’s. Luckily it …