I had my first doctor’s appointment today, a Dr. Frishberg (neurologist), in Carlsbad. K was nice enough to take the day off and come with me, thank god for that man. The doc did a neuro status exam, we talked a bit about how I was diagnosed and he was …
Family gathering weekend was a blast, and for once I was not the epicenter of any drama. Unbelievable! I’m on my second week of Gilenya treatment and it seems to be working just fine – no side effects or anything. The drama is still not fully over – family part …
I really hope the majority of the drama is over. Had a serious talk with CH, things got mostly resolved and I mostly feel better. It’s going to take some time to get over it completely because feelings were hurt. But I’m glad we did it and it’s good to …
I can no longer tell if this exhaustion is purely due to the emotional state lately or if it’s the telltale fatigue returning. Sleep is weird, inadequate, not restful. Hopefully it’s resolved soon. A brief mention of the wanting to move to the US today where N was surprised at …
Today has been… I don’t even know what. I’ve been exhausted all day. Mom has been calling because she’s worried about me being tired from antihistamines. Even though she knows they make you tired. Apparently my health still freaks her out. I don’t think that’s ever going to change. Anyway, I woke …
Is this going to turn out to be the longest year in memory? This past Thursday was tests day again. Every 6 months, I repeat the same tests and eye exam for the study I’m part of. Pretty quick and painless. The upcoming Monday however? That’s probably gonna be not …
The weather is lovely although I could do without the full days of rain. Life is pretty good right now. I’ve finally reached a state of….normal? That’s the best word I can think of right now to describe it. The fatigue is absent, my memory has been improving and in …
The time of no sleep is over. It was a fun 2-3 weeks. I leveled out to a normal for a couple of days and then it went downhill. Had a couple of days of fatigue and am now at a point where it’s gotten a bit better, but I …
I guess it’s about time to tell the story of how this whole MS ordeal started for me. Cue January 2013…I think? Honestly, my memory is not what it used to be. Anyhow, somewhere around new year’s I started feeling slight numbing sensations in my thumb and index finger of …
It is very quiet. No I haven’t disappeared from the face of the earth. I’ve just been busy burning myself to a crisp in the sun and reading the GoT books. Currently I’m in a waiting room waiting for my turn to do yet another MRI. This hospital is going …